Understanding Fragile X and Guardianship
Fragile X Syndrome (FXS) can significantly impact a person’s cognitive and behavioral development, often leading families to consider guardianship options. Guardianship ensures that individuals with FXS receive the necessary support and care throughout their lives. It allows trusted guardians to make important decisions regarding education, healthcare, and overall well-being, ensuring that their loved ones have the resources and advocacy they need to thrive. Understanding the legal and emotional aspects of guardianship is crucial for families navigating this journey, helping to provide stability and security for individuals with Fragile X Syndrome.
Here are links to resources that can help you determine if guardianship or a similar alternative is the right choice for you and your situation:
http://www.moguardianship.com/
https://www.moadvocacy.org/resources/guardianship
St. Louis Arc – supported decision making
